BANGOR – Most kids spend their time outdoors or playing with toys, but a young boy in Bangor has spent a majority of his life in hospitals.
Bentley has been dealing with severe chronic kidney disease his whole life.
In September 2015, he received a kidney from his aunt to replace the failing ones he was born with.
Then, about two years ago, his mother Heather Kinsella found out the organ hadn’t been holding up well.
Doctors told her a blockage was causing it to deteriorate.
“They had done a biopsy on him and I remember it clear as day. They wanted to show me the tissue that his kidney was made of when it was transplanted compared to the tissue that it was made of now. And I was devastated,” Kinsella said.
So for the last two years, Heather and her family have been searching for donor matches for the kindergartner.
Currently, they have a list of nine potential donors, but she said the uncertainty of her son’s health weighs on her mind.
“I have to think about every aspect, all the way around, when it comes to Bentley and he’s all I have. He’s my baby. I wish I would be the one to give him a kidney. I wish I could take the disease away from him,” Kinsella said.
She says it’s tough to focus on the positives, but Bentley’s constant smile and energy give her and her family hope.
“You know, he’s really tolerant. He’s such a happy kid, surprising for all the things he’s been through. Yeah, you can’t help but love this kid,” Bentley’s nurse Laurie Chisholm said.
Backed by the constant support Bentley’s gotten from his family, he doesn’t let it bring him down.
“He is just incredible because for him to be growing and thriving and talking and walking from a kidney that’s very close to being gone is quite frankly amazing,” Kinsella said.